Science

Sickle Cell Disease Care in the Emergency Department: Improvement Initiatives and Ongoing Research

This webinar covers current evidence-based best practices and ongoing research designed to improve the care of patients with sickle cell disease in emergency departments. The session is cosponsored by the HHS Office of Minority Health and the American College of Emergency Physicians. This video is by the National Heart, Lung, and Blood Institute (NHLBI), part of the National Institutes of Health (NIH).

Bone Marrow Transplants, Other Therapies, and Sickle Cell Disease

This webinar highlights research findings from various NHLBI-funded studies and evaluates bone marrow transplant therapies for sickle cell disease. This video is by the National Heart, Lung, and Blood Institute (NHLBI), part of the National Institutes of Health (NIH). Learn more: https://www.nhlbi.nih.gov/grants-and-training Follow us on Twitter: http://www.twitter.com/nih_nhlbi Like us on Facebook: http://www.facebook.com/NHLBI

Genetic Therapies in Sickle Cell Disease

This webinar provides an overview of genetic therapies — what they are, how they work, and how they may be able to prevent or treat diseases. It also highlights activities of the Cure Sickle Cell Initiative, an NHLBI-led collaborative research effort to accelerate the development of genetic therapies to cure sickle cell disease. And you’ll hear a patient's perspective of participating in clinical trials and the importance of safe and widely available cures. This video is by the National Heart, Lung, and Blood Institute (NHLBI), part of the National Institutes of Health (NIH).

Serving the Sickle Cell Disease Community Here and Abroad

This webinar highlights how NHLBI is working to bring innovations to people affected by sickle cell disease across the globe. This video is by the National Heart, Lung, and Blood Institute (NHLBI), part of the National Institutes of Health (NIH). Learn more: https://www.nhlbi.nih.gov/grants-and-training Follow us on Twitter: http://www.twitter.com/nih_nhlbi Like us on Facebook: http://www.facebook.com/NHLBI

Preventing Strokes in Children with Sickle Cell Disease

Nearly 300,000 children are born with sickle cell disease (SCD) around the world each year. Watch Michael R. Debaun, MD, MPH, discuss how the Primary Prevention of Stroke in Children with SCD in Sub-Saharan Africa II study, funded by the National Institute of Neurological Disorders and Stroke, aims to help children with sickle cell disease live stroke-free by 2025. This video is by the National Heart, Lung, and Blood Institute (NHLBI), part of the National Institutes of Health (NIH). Dr.

Living with and Managing Sickle Cell Disease

Tiffany was born with the most severe form of sickle cell disease, sickle cell anemia. She has lived with the symptoms and complications of sickle cell disease her whole life. She was hospitalized multiple times after giving birth to her daughter, when she began treatment with a medicine called hydroxyurea. Although her brother had experienced side effects with hydroxyurea, Tiffany had success with the treatment. By following her treatment plan and living a healthy lifestyle, Tiffany has a happy, full life.

Investing in a Cure for Sickle Cell Disease: Lakshmanan Krishnamurti, M.D.

Watch this video to see Lakshmanan Krishnamurti, MD, discuss how NHLBI brings researchers together with the shared goal of improving quality of life for patients with sickle cell disease. This video is by the National Heart, Lung, and Blood Institute (NHLBI), part of the National Institutes of Health (NIH). Dr. Krishnamurti is Director of the Pediatric BMT Program at the Aflac Cancer and Blood Disorders Center at Children’s Healthcare of Atlanta/Emory University.

Investigating New Cures for Sickle Cell Disease

Only 1 in 7 people with sickle cell disease has a complete matched tissue donor for a bone marrow transplant. Watch Courtney Fitzhugh, MD, discuss how her research may expand cures for people with sickle cell disease by allowing patients who have half-matched tissue donors to be eligible for a bone marrow transplant. This video is by the National Heart, Lung, and Blood Institute (NHLBI), part of the National Institutes of Health (NIH). Dr. Fitzhugh is a Lasker Clinical Research Scholar in the Laboratory of Early Sickle Mortality Prevention at NHLBI.

Living with and Managing Iron-Deficiency Anemia

Susan had symptoms including tiredness, poor skin tone, dizziness, and depression. Her doctor diagnosed her with iron-deficiency anemia. To improve her condition, Susan had a minor surgical procedure to stop her monthly periods. She also made other changes to help her feel better, like taking iron supplements to raise her iron levels, eating healthier foods, getting enough sleep, and exercising. This video is by the National Heart, Lung, and Blood Institute (NHLBI), part of the National Institutes of Health (NIH).

Improving Quality of Life Through Sickle Cell Research: Marsha J. Treadwell, Ph.D.

Watch this video to see Marsha J. Treadwell, PhD, discuss how pain management research funded by NHLBI helps improve quality of life for patients with sickle cell disease. This video is by the National Heart, Lung, and Blood Institute (NHLBI), part of the National Institutes of Health (NIH). Dr. Treadwell is Director of the Northern California Network of Care for Sickle Cell Disease at UCSF Benioff Children's Hospital Oakland.