Living with and Managing Sickle Cell Disease

Tiffany was born with the most severe form of sickle cell disease, sickle cell anemia. She has lived with the symptoms and complications of sickle cell disease her whole life. She was hospitalized multiple times after giving birth to her daughter, when she began treatment with a medicine called hydroxyurea. Although her brother had experienced side effects with hydroxyurea, Tiffany had success with the treatment. By following her treatment plan and living a healthy lifestyle, Tiffany has a happy, full life.

Investigating New Cures for Sickle Cell Disease

Only 1 in 7 people with sickle cell disease has a complete matched tissue donor for a bone marrow transplant. Watch Courtney Fitzhugh, MD, discuss how her research may expand cures for people with sickle cell disease by allowing patients who have half-matched tissue donors to be eligible for a bone marrow transplant. This video is by the National Heart, Lung, and Blood Institute (NHLBI), part of the National Institutes of Health (NIH). Dr. Fitzhugh is a Lasker Clinical Research Scholar in the Laboratory of Early Sickle Mortality Prevention at NHLBI.

Serving the Sickle Cell Disease Community Here and Abroad

This webinar highlights how NHLBI is working to bring innovations to people affected by sickle cell disease across the globe. This video is by the National Heart, Lung, and Blood Institute (NHLBI), part of the National Institutes of Health (NIH). Learn more: https://www.nhlbi.nih.gov/grants-and-training Follow us on Twitter: http://www.twitter.com/nih_nhlbi Like us on Facebook: http://www.facebook.com/NHLBI

Managing Sickle Cell Disease as a Teenager

Nicholas was diagnosed with sickle cell disease soon after he was born, and he overcame numerous health obstacles throughout his childhood. Watch this video to hear Nicholas and his mother, Bridget, discuss how Nicholas manages his disease, allowing him to live a fulfilling life as a teenager. This video is by the National Heart, Lung, and Blood Institute (NHLBI), part of the National Institutes of Health (NIH).

Living with and Managing Iron-Deficiency Anemia

Susan had symptoms including tiredness, poor skin tone, dizziness, and depression. Her doctor diagnosed her with iron-deficiency anemia. To improve her condition, Susan had a minor surgical procedure to stop her monthly periods. She also made other changes to help her feel better, like taking iron supplements to raise her iron levels, eating healthier foods, getting enough sleep, and exercising. This video is by the National Heart, Lung, and Blood Institute (NHLBI), part of the National Institutes of Health (NIH).

Sickle Cell Disease Care in the Emergency Department: Improvement Initiatives and Ongoing Research

This webinar covers current evidence-based best practices and ongoing research designed to improve the care of patients with sickle cell disease in emergency departments. The session is cosponsored by the HHS Office of Minority Health and the American College of Emergency Physicians. This video is by the National Heart, Lung, and Blood Institute (NHLBI), part of the National Institutes of Health (NIH).

Bone Marrow Transplants, Other Therapies, and Sickle Cell Disease

This webinar highlights research findings from various NHLBI-funded studies and evaluates bone marrow transplant therapies for sickle cell disease. This video is by the National Heart, Lung, and Blood Institute (NHLBI), part of the National Institutes of Health (NIH). Learn more: https://www.nhlbi.nih.gov/grants-and-training Follow us on Twitter: http://www.twitter.com/nih_nhlbi Like us on Facebook: http://www.facebook.com/NHLBI

Genetic Therapies in Sickle Cell Disease

This webinar provides an overview of genetic therapies — what they are, how they work, and how they may be able to prevent or treat diseases. It also highlights activities of the Cure Sickle Cell Initiative, an NHLBI-led collaborative research effort to accelerate the development of genetic therapies to cure sickle cell disease. And you’ll hear a patient's perspective of participating in clinical trials and the importance of safe and widely available cures. This video is by the National Heart, Lung, and Blood Institute (NHLBI), part of the National Institutes of Health (NIH).

Improving Quality of Life Through Sickle Cell Research: Marsha J. Treadwell, Ph.D.

Watch this video to see Marsha J. Treadwell, PhD, discuss how pain management research funded by NHLBI helps improve quality of life for patients with sickle cell disease. This video is by the National Heart, Lung, and Blood Institute (NHLBI), part of the National Institutes of Health (NIH). Dr. Treadwell is Director of the Northern California Network of Care for Sickle Cell Disease at UCSF Benioff Children's Hospital Oakland.

Taking a Spirometry Test

Chronic obstructive pulmonary disease (COPD) is a long-term lung disease. Watch this video to see Antonello Punturieri, MD, demonstrate how to take a simple lung test that doctors use to diagnose COPD. This video is by Learn More, Breathe Better — a program sponsored by the National Heart, Lung, and Blood Institute (NHLBI), part of the National Institutes of Health (NIH). Our goal is to bring greater visibility to lung health by translating research for public and professional education programs. Dr. Punturieri is a program officer in NHLBI’s Division of Lung Diseases.

Raise Awareness About Chronic Obstructive Pulmonary Disease (COPD)

Chronic obstructive pulmonary disease (COPD) is a long-term lung disease. Watch this video to learn more about COPD. This video is by COPD Learn More, Breathe Better — a program sponsored by the National Heart, Lung, and Blood Institute (NHLBI), part of the National Institutes of Health (NIH). Our goal is to increase awareness and understanding of COPD amongst patients, people at risk, loved ones, caregivers, and providers.

How Can We Help People Recognize Signs of COPD?

Chronic obstructive pulmonary disease (COPD), which includes emphysema and chronic bronchitis, is a serious lung disease that makes it hard to breathe. Earlier diagnosis and treatment can make a big difference in quality of life for people who have COPD. How many people have COPD? How can we help people recognize the signs sooner? Watch National Heart, Lung, and Blood Institute (NHLBI) Breathe Better Network partners — including Dorney-Koppel Foundation and Atrium Health — share their stories.

Recognize the early symptoms of COPD: Learn More Breathe Better

Chronic Obstructive Pulmonary Disease (COPD) is a serious lung disease that makes it hard to breathe. Common symptoms that people often mistake as normal signs of aging include wheezing, shortness of breath, ongoing coughing, chest tightness, or a combination of all. If you or a loved one is experiencing symptoms, talk with a health care provider about getting a breathing test. Share this animation with others to spread the word. Learn more, breathe better at, https://www.nhlbi.nih.gov/breathebetter

The Future of COPD Research and Treatment

Chronic obstructive pulmonary disease (COPD), which includes emphysema and chronic bronchitis, is a leading cause of death and disability in the United States. Watch Dr. Jim Kiley discuss NHLBI’s work to advance the future of COPD research and treatment. This video is by Learn More, Breathe Better — a program sponsored by the National Heart, Lung, and Blood Institute (NHLBI), part of the National Institutes of Health (NIH). Our goal is to bring greater visibility to lung health by translating research for public and professional education programs. Dr.

The Impact of the COPD National Action Plan

Chronic obstructive pulmonary disease (COPD), which includes emphysema and chronic bronchitis, is a leading cause of death in the United States. The COPD National Action Plan was created to address the disease by uniting key stakeholders in the fight against it. Watch Dr. Jim Kiley and representatives from Breathe Better Network partners Atrium Health, Respiratory Health Association, and the American Lung Association discuss the impact and importance of the COPD National Action Plan on their work.